The Scleroderma Book
Zusammenfassung
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The Scleroderma Book by Maureen Mayes
An autoimmune disease in the family with Lupus, Rheumatoid Arthritis, and Polymyositis, Scleroderma afflicts hundreds of thousands of people in the United States. And yet there are very few sources of information for men and women with this disease. Now, in The Scleroderma Book, one of the nation's leading authorities provides a comprehensive guide written specifically for patients and their families. Dr. Maureen Mayes has drawn on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good-humored, frank discussion about how to cope, day in and day out, with an uncertain future - how to be a "person living with" scleroderma, not a "victim suffering from" it. Touching on virtually every aspect of this disorder, The Scleroderma Book can be used as a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease.
Maureen D. Mayes is a rheumatologist and Professor of Medicine in the Division of Rheumatology and Clinical Immunogenetics at the University of Texas-Houston Medical School where she directs the Scleroderma Clinic. She is currently the Principal Investigator of the NIH/NIAMS funded 'Scleroderma Family Registry and DNA Repository' and is author of more than 80 publications relating to scleroderma, its complications and its treatment. Dr. Mayes obtained her Masters of Public Health at the University of Michigan where she studied the epidemiology of scleroderma, resulting in a comprehensive analysis of the prevalence, incidence and survival of this disease. As Principal Investigator of the Scleroderma Family Registry and DNA Repository, she is currently studying the role of genetic factors in scleroderma susceptibility and disease severity. Dr. Mayes also conducts clinical treatment trials in scleroderma, both NIH and industry sponsored.
| SKU | Nicht verfügbar |
| ISBN 13 | 9780195115079 |
| ISBN 10 | 0195115074 |
| Titel | The Scleroderma Book |
| Autor | Maureen Mayes |
| Buchzustand | Nicht verfügbar |
| Bindungsart | Hardback |
| Verlag | Oxford University Press Inc |
| Erscheinungsjahr | 1999-05-20 |
| Seitenanzahl | 192 |
| Hinweis auf dem Einband | Die Abbildung des Buches dient nur Illustrationszwecken, die tatsächliche Bindung, das Cover und die Auflage können sich davon unterscheiden. |
| Hinweis | Nicht verfügbar |