Pain in Relation by Alyson Patsavas

Pain in Relation by Alyson Patsavas

Pain in Relation: On Causality, Chronicity, and (Crip) Evidence argues that the dominant stories circulating within contemporary US culture are marked by seemingly contradictory certainties: pain is at once subjective yet universal; that pain makes life unlivable and can be overcome with perseverance. These certainties graft onto pained people as impossible imperatives: the imperatives to live “despite” our pain and to defend the value of lives imagined to be compromised “because of” it. Alyson Patsavas outlines the harm these imperatives cause and draws on feminist, queer, and disability theory to offer alternative frameworks for making sense of and relating to pain.

The study fleshes out “crip autotheory” and experiments with evidencing practices, using anecdotes, journal entries, personal reflections, list-making, and photography to map “cripistemologies of pain,” or critical, disability-informed experiential ways of knowing pain. Equal parts cultural critique, intimate portrait of pained life, and commentary, Pain in Relation invites readers to challenge what they think they know about pain and explore new ways of relating to pain, pained life, and the futures we imagine for pained people.

Alyson Patsavas is Associate Professor in the Department of Disability and Human Development at the University of Illinois Chicago.