Thriving with Neurofibromatosis by Kristi Hopkins

Thriving with Neurofibromatosis by Kristi Hopkins

1 in 3000 people are born with Neurofibromatosis. It affects all of us in different ways. For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF. Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks. In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves. In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do YOU. Thriving with Neurofibromatosis. We ALL have a story, this is mine.

SKU	Unavailable
ISBN 13	9781456358693
ISBN 10	1456358693
Title	Thriving with Neurofibromatosis
Author	Kristi Hopkins
Condition	Unavailable
Binding Type	Paperback
Publisher	Createspace
Year published	2010-12-02
Number of pages	129
Cover note	Book picture is for illustrative purposes only, actual binding, cover or edition may vary.
Note	Unavailable